Welcome to the page of
Julian Fernandez
Personal Amount Raised:
$285.50
Personal fundraising goal: $1,000.00
Team Captain
Self Donor
$100
$250
In honor of Cari Dasen and John Spiegel
In 2020, I lost my Aunt Cari Dasen, a remarkable woman whose life was cut short by ALS after a valiant two-year battle. Cari was the epitome of hard work and dedication; her tireless efforts in everything she pursued were a testament to her strength and intelligence. She was caring and selflessly devoted her time and energy to those around her, touching lives with her compassion and empathy. In honor of her enduring spirit and the indelible impact she left on everyone she met, I am participating in the ALS Golden West's Running Bitcoin Challenge. This endeavor is a tribute to Cari’s memory and John Spiegel, another inspiring individual whose kindness and brilliance have deeply influenced many. Witnessing the challenges posed by ALS has spurred me to contribute to the search for a cure. As I run in this challenge, every step I take honors the perseverance and selflessness that Cari exemplified, driving the mission to support those affected by ALS and intensifying the call for urgent advancements in treatments and cures.
- The average life expectancy of an ALS patient is two to five years from the time of diagnosis.
- Every 90 minutes someone in this country is diagnosed with ALS, and every 90 minutes another person will lose their battle against this disease.
- There are no known cures and only modestly effective treatments.
- Caring for a loved one with ALS costs families an average of $250,000 USD each year.