Welcome to the fundraising team of
In memory of Grace Bailey
Created by: Tina Behboudi
Funds Raised
$4,332.00
Goal
$10,000.00
Goal Amount, Fund Created By
Welcome to my Tribute Fund Page
The Grace Bailey Memorial fund was created to honor our mother who battled ALS for 1 1/2 years before losing her life on August 30, 2021. ALS is a progressive degenerative disease that affects a persons neuro system. There is currently no cure and very limited treatment options. Currently doctors are only able to help those who suffer with ALS by managing their symptoms. The cost associated with this is expansive.
Our mom had what is referred to as Bulbar onset ALS. Meaning it attacked her Bulbar region first. It started with slurred speech. After 5 months she lost her ability to speak. It progressed to difficulty swallowing, after only six months she could no longer swallow and required a gtube to get food. She started to lose mobility in her hands and arms making it difficulty to do everyday things like shower and dress herself. She also lost mobility in her legs which required her to use a walker and then a wheel chair. Throughout the course of this disease her breathing was also compromised. These impediments required a slew of medical equipment like a bi pap machine to help breathing, oxygen, cough assist machine, a pump to administer food for her tube, a Tobi devise to help her communicate, the list continues. This only covers the medical equipment that was required. There was also doctors appointments, medication, and caretaking needs.
All the money raised under this fund goes to the ALS association who provide direct assistance to patients currently suffering from this horrible disease. They also provide funding to raise awareness and research to try and combat ALS.
Grace was a devoted mother and grandmother. She was incredibly talented and enjoyed sewing, quilting, crocheting, and painting. She is remembered for always living with an open heart and for her love of Snow White, dancing, her family, and Coca-cola. Throughout her life she was guided by her faith and love for God and Jesus. And while we have faith that she is in a better place, free from the harrowing limitations of this disease, we miss her terribly and are committed to helping other patients and families trying to navigate through this disease.
We thank you in advance for helping us in this cause in memory of our mom. No amount is to small and we thank you for taking the time to visit this page and donate.
Personal Progress:
of Goal
$4,332
Raised
$10,000.00
Donor Honor Roll
Family and Friends
$2,785
Tina Behboudi
$1,122
Tina Behboudi
$300
Cory Duny
$75
Linda Fredericksen
$25
Amanda Mayhew
$25
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