In Loving Memory of David Jordan

Welcome to Our Story

David was in great health and recently semi-retired when he was diagnosed with ALS in January 2019. He was given 2-5 years to live, and he lived his best possible life each day while battling the relentless daily progression of ALS robbing him of his ability to use his arms, hands, legs and finally his voice and ability to breathe. Friends and family were in awe watching David navigate the challenges with optimism, humor, courage and unbelievably even joy. David was 74-years young and lived 19-months from the time of diagnosis.

The Network (then known as the Golden West Chapter) was there for us from the beginning. Their wrap around model of care allowed us to see every specialist in the field on a single day visit at the Cedars Sinai dedicated ALS clinic. Our Care Manager, Cindy Marks, was engaged with us every step of the way. Cindy's depth of knowledge and endless energy and desire to obtain equipment, resources, information and coordinating and leading our support group meetings, had a profound impact on our journey and we will be forever grateful.

Through her efforts David taught his last class with one finger, exactly three months before his death, made possible by technology experts  we were able to find through The Network. Those of you who know David well can imagine how very much this meant to him. Equally impactful through Cindy, we built an amazing community of friends all experiencing ALS in diverse ways but Walking and Rolling the path together.

Our family is committed to fighting for all of those in the struggle today and those that will be diagnosed each day while we work towards a cure. Even with insurance, the average family spends over $200,000 each year to manage life with ALS. It is essential to not only help support those living with ALS today, but to continue to work to find new and improved treatments and to continue to search for a cure.

This annual fundraiser is our opportunity to make a difference to those in the fight each day and those hearing the words "you have ALS". If you are able to help, please join me as we follow David's example of fighting this disease with optimism, hope and humor.

With much love and gratitude,

Eve (always with David)

David always said he not know how he got ALS since he was never that good at baseball (Lou Gehrig).